Skip to content

Parent and Carer Toolkit for families with neurodivergent children/young people

Local and national sources of advice and support for parents and carers of neurodivergent children/young people

Text says Early Years Education and Skills  Text says Autism Education Trust Training Partner.  There si a colourful circle with a figure of a person in the middle.

 This information was made by the Autism Social Communication Education and Training Service (ASCETS).

You can find more help, advice, and services on the Sheffield Directory. This includes the SEND Local Offer.

ASCETS is not linked to any of the groups or companies listed. They are shared in good faith, based on what others have said and how they support neurodiverse people.

If you have a problem with any of the organisations listed, please e-mail us at localoffer@sheffield.gov.uk. We will take the link off our page.  You can also let us know if you think any other organisations should be included.                      

Service/Organisation

Detail

Autism Social Communication Education Training Service phoneline

0114 250 6800

Sheffield Autistic Society

A local charity for autistic people and their families 

Autism Plus

A charity which supports adults and young people with autism & other needs with supported living, day opportunities and employment.

Employment Support (18yrs and over), Positive Steps - a new six week course to help you overcome challenges and build confidence  

Sheffield Parent Carer Forum 

Bringing together parent carers from across Sheffield to provide mutual support, exchange information, and influence policy and practice around SEND:

Sheffield Parent Carer Forum Peer Support Service

The Peer Support Workers offer parent carers:

Information, advice and signposting to relevant services

Confidential one-to-one support via telephone, video call or face-to-face meetings in a community space (flexible appointment times)

Information sessions about common issues

Drop-in sessions where parents can meet other parents facing similar challenges 

Sheffield Carers Centre 

Independent charity offering support to Sheffield carers by providing high quality information, advice, advocacy and support 

Ambitious About Autism

A national charity based in London 

Sunshine Support

A national organisation based in Derby offering online ‘Cuppa and a chat’ sessions

South Yorkshire Police Autism Alert Card

The free, credit-card sized, Autism Alert cards help police and other emergency services workers communicate with autistic residents better.

Service/Organisation

Detail

All Inc trampolining

Trampoline park.

Jump Inc

SEN trampolining sessions (check website for up-coming sessions)

Kids Soft Play Kingdom

based in Killamarsh, has SEN play sessions on Tuesday, Thursdays and first Sunday every month (email: killamarshsc@ne-derbyshire.gov.uk for enquiries)

Green Top Circus

Spectrum Circus – autism friendly classes

Friends of the Willow Tree

Baby and toddler plus 0-25 SEND sensory sessions

Sam’s Space

a purpose-built soft play facility at Firth Park Methodist Church. See their Facebook and Instagram for regular updates.

Quiet sessions in their soft play area (with access to their sensory room) are run on a Saturday every 4 weeks. Sessions limited to 6 families at a time and booking is essential.

National Emergency Services Museum

Under 5s sensory play sessions - not autism specific, but may be of interest to children with a passion for transport

Autistic Children and Carers Together (ACCT) Sheffield groups: 

Acctivate 

Teenage club 

ACCTing Out, social group for young adults, 18 and over 

Family swimming session

Family, children and young peoples’ social groups

Flycheese

Digital art and animation, workshops and accredited courses

Spectrum Gaming

An online gaming community for autistic young people focused on building friendships, self-acceptance and advocacy

A Mind Apart

An inclusive community arts organisation running performing arts classes and clubs for children and adults

Sheffield Parent Carer Forum

Further information on groups and a wide range of subjects relating to SEND in Sheffield

Service/Organisation

Detail

SEND Travel Assessment and Training team

If your child has an Educational Health Care Plan (EHCP), or is currently undergoing an assessment for an EHCP, they may be eligible for travel support.

 

They arrange home to school transport, Independent Travel Training and Post 16 travel support for eligible children and young adults.

 

Contact the Travel Assessment and Training Team on 0114 205 3542.

Service/Organisation

Detail

Hospital

Sheffield Children’s Hospital NHS ‘Tips from Parents’

Advice on assistance for children with learning disabilities or autism:

A guide to using hospital services

Includes information on Reasonable Adjustments, Hospital Passport and Paediatric Pain Profile.

National Autistic Society Health Passport

My Health Passport is a resource for autistic people who might need hospital treatment.

Sleep

Sheffield Children’s Hospital NHS

Sleep support advice.

Cerebra

Not autism specific, advice for families of children with a range of neurological conditions.

Toileting

National Autistic Society toileting guidance

Advice and guidance on toileting.

Sheffield Children’s NHS Community Continence Team

Supports children under 16 from Sheffield.

 

GPs, health visitors, school nurses and secondary care professionals can refer your child to this service.

Eating

National Autistic Society eating guidance

Advice and guidance on eating

Beat

National charity offering information and support on a range of eating disorders.

 

They have an information page on ARFID (avoidant/restricted food intake).

Sensory toys and equipment

Fledglings

A not for profit shop, part of the charity Contact.

Emotional and mental health

Door 43 (Sheffield Futures)

Mental health and wellbeing service for young people aged 13-25 who are feeling low or anxious. (Not a crisis service, referral may take around 2 weeks).

Kooth

Online mental wellbeing community for ages 10 to 25.

Shout

Available 24 hours a day, 7 days a week - mental health support by text.

Sheffield Mental Health guide

Information on mental health services, activities and resources.

Sheffield Children’s NHS – ‘Understanding and Managing Difficult Feelings in Autism’

Videos and resources for families who have autistic children.

Sheffield Children’s NHS – Managing Anxiety in Autistic Children

Resource includes a variety of strategies and tips that will help further your understanding of anxiety.

Energy accounting video

Purple Ella discusses a strategy for managing and balancing energy levels.

Autistic burnout

Guide for parents and carers on autistic burnout.

Bereavement and loss

National Autistic Society - bereavement

Advice on bereavement for parent/carers

Cruse

National charity helping people through bereavement. Signs of grief in a child.

Hope Again

Cruse’s youth website offering bereavement support and advice.

Making Friends

Ambitious About Autism - Making friends as an autistic young person

A national charity based in London

National Autistic Society – supporting your autistic child

Advice and guidance for parent and carers on making friends

Autistic Children and Carers Together (ACCT) Sheffield groups: 

Acctivate 

Teenage club 

ACCTing Out, social group for young adults, 18 and over

Children and young peoples’ social groups

Sparkle Sheffield

Regularly organise online and in-person events where children and families can meet others without fear of judgment.

Siblings

Sibs

A national charity supporting people who grow up with or have grown up with a disabled brother or sister

Twinkle (Sparkle Sheffield – scroll down to the bottom of their page for more detail)

A sibling support group for children aged 7-16yrs who have an Autistic sibling.

E-mail: info@sparklesheffield.co.uk

Service/Organisation

Detail

National Society for the Prevention of Cruelty to Children (NSPCC) – What is gender identity?

National charity with advice on gender identity

National Education Union

Supporting trans and gender questioning students:

Advice to help school and college staff support gender variant or questioning students in the educational environment.

SayIt (Sheena Amos Youth Trust)

They are a Sheffield based charity for lesbian, gay, bisexual, trans, plus (LGBTQ+) young people and sexual health/HIV.

 

They run youth groups, parent/carer groups and offer training to schools and settings.

Service/Organisation

Detail

Ambitious about Autism – What is Autism

A national charity raising awareness and providing services for autistic people.

Ambitious about Autism - How to talk about autism

A national charity raising awareness and providing services for autistic people.

Ambitious about Autism – stimming and repetitive behaviour

A national charity raising awareness and providing services for autistic people.

National Autistic Society – Helping young people to understand their autistic identify

National charity giving advice and information for families and young people.

Spectrum Gaming and The Autistic Advocate

Statement on neurodiversity.

Autism Understood

A website about autism for autistic young people.

Children’s BBC (CBBC) video

Mae Grant, autistic teenager shares her story in a CBBC film.

Autism Identity and Me

Rebecca Duffus is a specialist advisory teacher for autism and her website helps you to understand, support and celebrate autistic young people.

Service/Organisation

Detail

Purple Ella

YouTube

Instagram

An autistic mum who shares content on autism on YouTube/Facebook/Instagram/Twitter/TikTok.

Authentically Emily

A student who is a mental health activist and autism advocate.

Autistic Not Weird

Created by Chris Bonnello an autistic ex-teacher, author and autism advocate. He shares content on Facebook/Instagram/YouTube/Twitter.

Dan Beadle

Autistic YouTuber.

BBC Bitesize

Schooling tips for parents of autistic children.

Autistic Girls’ Network

A registered charity which campaigns for better recognition and diagnosis of autistic girls, with a website and a Facebook group.

AuKids

Free online magazine.  The first UK magazine for parents of autistic children, co-founded by a parent and a Speech and Language Therapist.

Sally Cat

An author, blogger and illustrator, Sally Cat shares her experiences through her website, on Facebook, YouTube and TikTok and has authored her own book on the subject.

Last updated: